Public preferences for involvement in the governance of health data

Utilize este identificador para referenciar este registo: http://hdl.handle.net/10071/35745

Autoria:	Freitas, C. Amorim, M. Teles, E. L. Maia, T. Machado, H. Silva, S.
Data:	2020
Título próprio:	Public preferences for involvement in the governance of health data
Volume:	30
Título e volume do livro:	European Journal of Public Health
Paginação:	v294 - v295
Título do evento:	16th World Congress on Public Health 2020 Public Health for the future of humanity: Analysis, advocacy and action
Referência bibliográfica:	Freitas, C., Amorim, M., Teles, E. L., Maia, T., Machado, H., & Silva, S. (2020). Public preferences for involvement in the governance of health data. European Journal of Public Health. 30(5), v294-v295. https://doi.org/10.1093/eurpub/ckaa165.801
ISSN:	1101-1262
DOI (Digital Object Identifier):	10.1093/eurpub/ckaa165.801
Resumo:	Public involvement in the governance of epidemiological and public health studies can foster needs-driven research, enhance participants’ recruitment, reduce attrition and improve the quality of and ethics in research and surveillance. However, it can also reinforce health inequalities if it fails to ensure public representation across socioeconomic gradients. This study aimed to assess patients’ and carers’ preferences for involvement in collective health data governance, and its associated factors, to strengthen the evidence base for policy development.
Arbitragem científica:	yes
Acesso:	Acesso Aberto
Aparece nas coleções:	CIES-CRI - Comunicações a conferências internacionais

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