Utilize este identificador para referenciar este registo: http://hdl.handle.net/10071/35745
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Campo DCValorIdioma
dc.contributor.authorFreitas, C.-
dc.contributor.authorAmorim, M.-
dc.contributor.authorTeles, E. L.-
dc.contributor.authorMaia, T.-
dc.contributor.authorMachado, H.-
dc.contributor.authorSilva, S.-
dc.date.accessioned2025-12-15T11:03:06Z-
dc.date.available2025-12-15T11:03:06Z-
dc.date.issued2020-
dc.identifier.citationFreitas, C., Amorim, M., Teles, E. L., Maia, T., Machado, H., & Silva, S. (2020). Public preferences for involvement in the governance of health data. European Journal of Public Health. 30(5), v294-v295. https://doi.org/10.1093/eurpub/ckaa165.801-
dc.identifier.issn1101-1262-
dc.identifier.urihttp://hdl.handle.net/10071/35745-
dc.description.abstractPublic involvement in the governance of epidemiological and public health studies can foster needs-driven research, enhance participants’ recruitment, reduce attrition and improve the quality of and ethics in research and surveillance. However, it can also reinforce health inequalities if it fails to ensure public representation across socioeconomic gradients. This study aimed to assess patients’ and carers’ preferences for involvement in collective health data governance, and its associated factors, to strengthen the evidence base for policy development.eng
dc.language.isoeng-
dc.publisherOxford University Press-
dc.relationinfo:eu-repo/grantAgreement/FCT/Concurso de avaliação no âmbito do Programa Plurianual de Financiamento de Unidades de I&D (2017%2F2018) - Financiamento Base/UIDB%2F03126%2F2020/PT-
dc.relation.ispartofEuropean Journal of Public Health-
dc.rightsopenAccess-
dc.titlePublic preferences for involvement in the governance of health dataeng
dc.typeconferenceObject-
dc.event.title16th World Congress on Public Health 2020 Public Health for the future of humanity: Analysis, advocacy and action-
dc.event.typeConferênciapt
dc.event.date2020-
dc.paginationv294 - v295-
dc.peerreviewedyes-
dc.volume30-
dc.date.updated2025-12-15T11:01:54Z-
dc.description.versioninfo:eu-repo/semantics/publishedVersion-
dc.identifier.doi10.1093/eurpub/ckaa165.801-
dc.subject.fosDomínio/Área Científica::Ciências Médicas::Ciências da Saúdepor
iscte.identifier.cienciahttps://ciencia.iscte-iul.pt/id/ci-pub-81915-
iscte.alternateIdentifiers.wosWOS:000605268701472-
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